Wednesday, September 7, 2016

Post port day

Last night was a real struggle. I could not find a comfortable way to sleep. Any position that didn't upset the port site made my back hurt. I probably only got 3 hours of sleep total. I hope I can find some comfortable way to sleep soon because I can tell my body is getting drained.

Today I met with a Cardio thoracic surgeon to discuss getting a biopsy surgery on Friday. The plan so far is to put me to sleep, cut in to my throat below the windpipe and get a chunk of lymph node from deeper within my chest. The doctor said he'd be going over my PET scan results to make sure this was our only option. He explained that there could be an easier lymph node to access but he didn't see any on my CT scan.

My surgery yesterday cost $311 which was basically all the money we had in our account. They made me pay it all right then and I basically had to choose between getting the procedure done and buying groceries. I'm really hoping that I won't have to pay again on Friday because we really don't have the money. Sam has missed work to be with me and has to miss work Friday to take care of me post surgery. We already live paycheck to paycheck and now I've got all these extra medical expenses.

On a brighter note my hospital sock collection is growing. They give me these socks that say xxl but there is no way. I get that I have pretty giant feet but there are definitely people with much bigger feet than mine. I also got one of those very stylish rubber bracelets (like a livestrong) that let's people know I have a power port. I basically live in PJ'S and yoga pants so I'm pretty much the sexiest thing on the block.

Peace. Love. Fuck cancer

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